Stories of Eye Loss – Kids

We made contact with every other family we could find with bilateral retinoblastoma. They were all happy to talk to us and it really helped.

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Halfway through the story, Mum covered my left eye with her hand and asked if I could see how many fingers she was holding up. I replied of course I couldn’t, moved her hand and then supplied her with the correct answer. She tried again, just to receive the same answer from me. ... This was the catalyst that made her question the sight in my right eye.

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The waiting room at the radiotherapy clinic wasn’t the place to gain support and make friends. Everyone was so absorbed with what was happening to their child.

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I was fifteen - it was just six weeks ago. We were mucking around in the backyard making a chlorine bomb. This was the first time we’d ever tried to make one of these.

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I've had my glass eye my whole life. It hasn't stopped me from doing one thing. ... But really, I am a normal girl!

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I recently met a two year old who had just lost an eye. I told her parents, “Don’t stress. The new eye will just be part of her. She won’t know any different.”

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Jayde (my daughter) can see colours and make out some shapes. She loves dancing, swimming, and has lots of nice friends at school. Jayde gets around with Miss Candy, her pink and green cane.

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My heart just melted away, this beautiful little girl just lay in my arms so peaceful not knowing what a fright she had given us. I don’t know how or why but I just knew everything would be ok with her.

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I wish I had a camera the day Jenny put in her new eye. She was overjoyed. The look on her face – a smile that touched her ears. It was marvellous. She said, “I’ve got a new eye! I’ve got a new eye!”

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