Eye Loss from Retinoblastoma

The diagnosis of retinoblastoma is devastating for parents. Their young child is in danger from cancer. There may be a sense of urgency. Surgery to remove the eye may be necessary. Loretta McIntyre was five years old when a specialist visiting her remote community arranged an emergency evacuation to Perth to have her eye checked. Jillian, her mother, tells “A Story About Loretta”. Jillian’s story illustrates something which we often see in our clinic. Young children adjust very quickly to their new circumstances brought about by eye loss. The journey of recovery parents is far more complex. I am very grateful to Jillian for sharing her story.

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  • Adjusting to Eye Loss Mind Map

  • Stories of Eye Loss - Adults

    Peter Hackett - I Can’t See You

    One of the boys brought his 16-year-old girl friend to meet us. I said to her, “ I can’t see you but I can use Braille”. I made a gesture in her direction with my hands – I didn’t touch her. It was a joke. It was several years before she would speak to me. Now we laugh about it.
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    Nicole Abbott - Seeing Better

    Jayde (my daughter) can see colours and make out some shapes. She loves dancing, swimming, and has lots of nice friends at school. Jayde gets around with Miss Candy, her pink and green cane.
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